Real-World Data on Multiple Myeloma: A Prospective National Registry in Uruguay

Real-World Data on Multiple Myeloma: A Prospective National Registry in Uruguay


Authors:
 

Eloisa Riva, MD, Virginia Bove, MD, Fiorella Villano, MD, Alejandro Noria, Paula Petruskevicius, Maria Mori, MD, Carolina Córdoba, Adriana Cardeza, Lilian Diaz

Abstract:

Uruguayan population is 3,4 million, mostly caucasian (88%). Life expectancy is 77 years. Cancer is the second cause of death and the estimated incidence of Multiple Myeloma (MM) is 120 cases/year. Its diagnosis and monitoring are standardized and feasible, available nationwide. Treatment with Bortezomib, Thalidomide and stem cell transplant are available for all patients, regardless of their health care provider. However, there is no accurate data on MM incidence, care, treatment-results or mortality. The Uruguayan National Myeloma Registry is designed to document current clinical characteristics of newly diagnosed MM, management and outcome in a real-world setting. This information will be useful to plan strategies to improve our local approach and follow-up of this disease, reducing problems derived from extrapolating data from other realities.

Publication:

 Blood (2015) 126 (23):5614. https://doi.org/10.1182/blood.V126.23.5614.5614